12-year-old UK girl put through six rounds of chemo after years of misdiagnosis; now she is wheelchair-bound and ‘a ticking time bomb’

Years of chemotherapy marked Faye Condon’s battle against what was thought to be an autoimmune disorder, only for doctors to later uncover the rare Emery-Dreifuss muscular dystrophy. This genetic disorder warranted an entirely different treatment regimen, leaving Faye's family with the grief of lost time and the burden of ongoing health issues alongside an uncertain future.

12-year-old UK girl put through six rounds of chemo after years of misdiagnosis; now she is wheelchair-bound and ‘a ticking time bomb’
Years of chemotherapy marked Faye Condon’s battle against what was thought to be an autoimmune disorder, only for doctors to later uncover the rare Emery-Dreifuss muscular dystrophy. This genetic disorder warranted an entirely different treatment regimen, leaving Faye's family with the grief of lost time and the burden of ongoing health issues alongside an uncertain future.